SMA My Way is a community support tool for all those affected by SMA (Spinal Muscular Atrophy). From patients to caregivers, family and friends, our contributors are here to share their stories so we can empower one another to live our life, our way.
Navigating life with SMA can be challenging – but it can also be rewarding.
Be empowered by our patient and caregiver stories of honesty, humour and strength as they celebrate their individuality.
For those living with SMA and those supporting them, finding time to take care of their bodies and their minds is an essential part of their everyday experience. That might mean a morning caregiving routine or an afternoon cuddle session with a pet: just know that there’s no right or wrong way to live your everyday.
Accessing public spaces and services like playgrounds, transit, and businesses can often be frustrating for people living with SMA and those who care for them. Sometimes using those spaces might require adaptive equipment or ongoing advocacy for more inclusive spaces. Read more about our contributors’ experiences as they share their stories of accessibility successes and challenges.
Resources for people living with SMA or for those who support them often focus on early life, meaning that crucial aspects of adult life go unaddressed. Whether it’s job hunting, buying a home, or applying for post-secondary education, find out how members of the SMA community approach adulting.