SMA My Way:
Your Canadian SMA Community
SMA My Way is a community support tool for all those affected by SMA (Spinal Muscular Atrophy). From patients to caregivers, family and friends, our contributors are here to share their stories so we can empower one another to live our life, our way.
Accessing public spaces and services like playgrounds, transit, and businesses can often be frustrating for people living with SMA and those who care for them. Sometimes using those spaces might require adaptive equipment or ongoing advocacy for more inclusive spaces. Read more about our contributors’ experiences as they share their stories of accessibility successes and challenges.Explore our stories
Relationships with others are what keep us happy and healthy, oftentimes quite literally for people living with SMA. But there are also a number of misconceptions around those close relationships. Read more about how our contributors navigate relationships with family, friends, and romantic partners.Explore our stories
For those living with SMA and those supporting them, finding time to take care of their bodies and their minds is an essential part of their everyday experience. That might mean a morning caregiving routine or an afternoon cuddle session with a pet: just know that there’s no right or wrong way to live your everyday.Explore our stories
Resources for people living with SMA or for those who support them often focus on early life, meaning that crucial aspects of adult life go unaddressed. Whether it’s job hunting, buying a home, or applying for post-secondary education, find out how members of the SMA community approach adulting.Explore our stories
Hobbies are more than just a pastime, they’re a key part of our identity and self-expression. Gaming, music, writing, travel: discover the unique passions that drive the members of Canada’s SMA community, including their perspectives on key supports like adaptive equipment.Explore our stories
Parenting is commonly viewed as challenging, and this challenge can vary at different stages of a child’s life. Parenting a child with SMA can feel like an additional challenge, especially immediately after receiving a diagnosis. Fortunately, our experienced parents and caregivers have a thing or two to share about navigating family life, play, nutrition, and more while raising a child with SMA.Explore our stories
SPACES is a first-of-its-kind musical collaboration created for everyone with a disability by the SMA community. Each creative component of the program - the song, music video and album art - was led by someone with SMA. It uses the universal language of music to elevate the many voices of this community and celebrate our individuality. The song was written and performed by singer and songwriter James Ian, the music video was directed by Hollywood consultant and filmmaker Dominick Evans, and the SPACES album art was created by artist Zarek Elizondo, all of whom are living with SMA. We’re excited to share this with the world.